Neither had I until Monday.
We've noticed for a while now that The Girl's left eye could sometimes wander up in her head and almost get lost. It freaked us out; but if you know me, I'm not a 'dr person' so I was willing to 'wait it out'. At a visit to my own optometrist, who happens to be a member of our church, I asked him about it and he took a look at her and waved a few things around and said that we needed to go see a pediatric ophthalmologist... sooooooo after waiting it out again, C finally called and made an appointment for three months into the future (ha! 1st available!!!)
Monday was three months into the future. After 4 seconds w/ the dr he tells us he knows exactly what it is and that he even wrote a chapter in a book about it and that it is quiet rare actually and then he mumbled something about 'brown syndrome' and proceeded to walk out of the room. His nurse person came in and put drops in The Girl's eyes. If you could have heard the way say said "Daddy" (3 or 4 times) after she did that you'd have the same tears in your eyes that I did. PATHETIC! She got to leave the room w/ some groovy 'sunglasses' and wait with us in the waiting room for "15 minutes" that somehow turned into the longest 40 minutes of our lives. (read: loud, obnoxious, unruly other children were in the waiting room too) Surprisingly, or maybe it was an act of self-defense, The Girl fell asleep. For what it is worth: internet on cellphones is WORTH EVERY PENNY!!! I googled brown syndrome while we waited so we could at least get out of the dark a little. We were called back into the office and the dr tells us that the problem is in her right eye. At this point I'm thinking we need a new dr but then he explains to us the scoop. Basically one of the tendons/muscles that controls the movement of her right eye is too short and therefore when she goes to look up and to the left the eye can't move as far as the brain wants it to and the other eye overcompensates which is why it seems to disappear in her head.
What we do now.... we keep an eye on it! (How ironic!) Apparently, there are 3 levels to this syndrome; mild, moderate, and severe. We are in the mild category. For 6 months we watch; if she starts to tilt her head or change her posture to see better, we call asap.
The treatment: surgery. He words were "you leave her alone with me for 10 minutes while she is sleeping and I'll make it all better". At that point I stopped listening. You'll have to ask C just what it is that the dr will do in those 10 minutes... I think it has something to do with a shunt or extender or something. I just can't handle thinking about eye surgery on my 2 year old!!!
~Til next time!
3 comments:
oh dear...*hugs* i've never heard of it, but it sounds complicated. i hope it resolves itself without surgery.
surgery on your baby is scary terrifying. You feel like you're sitting in the waiting room forever and then when it's over it's like a blink of the eye. Nick was barely 2 months old when he had to have hernia surgery. So scary!
Hey, another friend of mine had a little girl with what sounds like the same problem. She had the surgery and was 100% better very quickly. Have faith!
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